When 13-year-old Jaxson Jordan found out that he had been named the 2019 Marine Corps Military Child of the Year® he got a coveted prize—his older brother’s favorite Operation Homefront hoodie given to recipients five years earlier when he also won the award.
“It’s time for me to welcome you into the MCOY family,” Jaxson said his brother Michael-Logan told him.
The seventh-grader was, for once, speechless when his parents gave him the news. They seemed so serious, his mom Rebecca Jordan setting up a video chat with his father Master Gunnery Sgt. Christopher Jordan, stationed in Okinawa. Jaxson credits his father with being an example of resiliency he strives to emulate. In 2006, Christopher Jordan was injured, and a fellow Marine killed in Iraq.
The challenge was one of many he and his family have faced. Even so, Jaxson’s approach to life is one with a hefty dose of humor, from dry or sarcastic to what some adults might consider a bit dark for a kid his age. But he realized that laughter, positivity and tackling problems head-on was the best way to cope after being diagnosed with nine overlapping autoimmune/inflammatory diseases at age 7.
More specifically, he has been diagnosed with: Systemic Onset Juvenile Idiopathic Arthritis, which attacks his organs; Polyarticular Juvenile Idiopathic Arthritis, which attacks more than five joints; Ankylosing Spondylitis; Ehlers-Danlos Syndrome Type III, a genetic disorder that affects joints and connective tissue; IgA Nephropathy Kidney Disease; Asthma; Interstitial Lung Disease; and Autoimmune Retinopathy and Cancer Associated Retinopathy, two very rare eye diseases. He’s also dyslexic.
“I bet you are googling these medical terms right now, aren’t you?” he wrote in an award application essay. “That’s okay. As many times as you have had to google these terms, I have had to retype this essay due to my dyslexia kicking in and my spellcheck having a field day!”
Along with his knack for making people laugh, Jaxson’s communication skills could rival the most seasoned salesman, as evidenced after his North Carolina neighborhood suffered the back-to-back devastation of hurricanes Michael and Florence. “I’ve got this,” he said when the principal of his sister’s school talked to him and his mother about trying to help victims.Taking $100 he had saved and another $100 match from his mom, he went to a local Walmart. He walked out with $400 in supplies, food and clothing after the manager matched with his own $200.
Jaxson caught on quickly. He walked business to business, pitching his idea for hurricane donations, mentioning to each manager or owner that Walmart had doubled their amount through its own donation. Turning it into a friendly competition, Jaxson brought back $1,200 worth in donations to his sister’s school to kick off the donation drive.
Jaxson has used that strength, purpose, hope and a love of advocacy to benefit the Arthritis Foundation as a Junior Ambassador. On behalf of the organization, he works on grassroots campaigns, including going to Washington D.C. to meet his senator and congressman, organizes walks and is a mentor to other children, telling them about his own challenges and helping them through theirs.
Aside from Junior Ambassador Awards, he has received many accolades for his volunteerism and leadership roles including Presidential Volunteer Awards, Logan’s Heroes Honu Award and Lead Award for Outstanding Community Service and Leadership, and multiple volunteer appreciation awards.
In the future he wants to help people with disabilities retain or regain their independence.
“Originally, I wanted to become a surgeon. However, I’m sure most people would prefer not to have a visually impaired person poking around in their insides!” Jaxson said. “Challenges are meant to be overcome. There’s always a way to greatness; always a way to get through challenges. You have to stay positive and spread kindness. When you spread kindness to people, they’ll spread it to others, and so on – like a ripple effect.”